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Stay up to date with our latest updates and news on our work, milestones achieved, and the latest developments in CF treatment access worldwide.

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Exposing the truth about Vertex Pharma at the European Cystic Fibrosis Conference 2025

Exposing the truth about Vertex Pharma at the European Cystic Fibrosis Conference 2025

Exposing the truth about Vertex Pharma at the European Cystic Fibrosis Conference 2025

1 hour ago2 min read

25th WHO Expert Committee on the Selection and Use of Essential Medicines

25th WHO Expert Committee on the Selection and Use of Essential Medicines

25th WHO Expert Committee on the Selection and Use of Essential Medicines

May 92 min read

Over 1,000 people took action to demand Vertex CEO puts lives before profits

Over 1,000 people took action to demand Vertex CEO puts lives before profits

Over 1,000 people took action to demand Vertex CEO puts lives before profits

Apr 171 min read

Cystic Fibrosis Patients and Families in India Urge Court to Ensure Access to Life-Saving Drug

Cystic Fibrosis Patients and Families in India Urge Court to Ensure Access to Life-Saving Drug

Cystic Fibrosis Patients and Families in India Urge Court to Ensure Access to Life-Saving Drug

Mar 66 min read

Uzbekistan CF patients call for access to lifesaving medicines

Uzbekistan CF patients call for access to lifesaving medicines

Uzbekistan CF patients call for access to lifesaving medicines

Feb 133 min read

Joint Statement in Response to South African Competition Commission Decision to Drop Investigation Against Vertex Pharmaceuticals on Treatment for Cystic Fibrosis

Joint Statement in Response to South African Competition Commission Decision to Drop Investigation Against Vertex Pharmaceuticals on Treatment for Cystic Fibrosis

Joint Statement in Response to South African Competition Commission Decision to Drop Investigation Against Vertex Pharmaceuticals on Treatment for Cystic Fibrosis

Dec 13, 20247 min read

Indian CF patient & advocates demand government action

Indian CF patient & advocates demand government action

Indian CF patient & advocates demand government action

Nov 27, 20241 min read

Taking the fight to Vertex’s doorstep

Taking the fight to Vertex’s doorstep

Taking the fight to Vertex’s doorstep

Nov 27, 20243 min read

Access breakthrough in Lithuania & Estonia!

Access breakthrough in Lithuania & Estonia!

Access breakthrough in Lithuania & Estonia!

Oct 2, 20242 min read

Important update on landmark legal case against Vertex

Important update on landmark legal case against Vertex

Important update on landmark legal case against Vertex

Aug 21, 20244 min read

Statement on the withdrawal of South African case

Statement on the withdrawal of South African case

Statement on the withdrawal of South African case

Aug 1, 20241 min read

VERTEX’S ‘DONATION PROGRAMME’ IMPORTANT UPDATE

VERTEX’S ‘DONATION PROGRAMME’ IMPORTANT UPDATE

VERTEX’S ‘DONATION PROGRAMME’ IMPORTANT UPDATE

Jul 3, 20243 min read

Cystic fibrosis mums confront Vertex at ECFC 2024

Cystic fibrosis mums confront Vertex at ECFC 2024

Cystic fibrosis mums confront Vertex at ECFC 2024

Jun 13, 20242 min read

Patients across Europe still denied access to lifesaving CF treatment

Patients across Europe still denied access to lifesaving CF treatment

Patients across Europe still denied access to lifesaving CF treatment

May 30, 20243 min read

How Cystic Fibrosis families took on Vertex in Hollywood

How Cystic Fibrosis families took on Vertex in Hollywood

How Cystic Fibrosis families took on Vertex in Hollywood

Apr 25, 20242 min read

Statement on SACFA Announcement

Statement on SACFA Announcement

Statement on SACFA Announcement

Apr 18, 20242 min read

Announcement on Breakthrough Prize collaboration

Announcement on Breakthrough Prize collaboration

Announcement on Breakthrough Prize collaboration

Apr 11, 20242 min read

South African cystic fibrosis patients take on landmark legal fight for access to lifesaving treatment

South African cystic fibrosis patients take on landmark legal fight for access to lifesaving treatment

South African cystic fibrosis patients take on landmark legal fight for access to lifesaving treatment

Mar 4, 20243 min read

A plea for life that was ignored by Vertex

A plea for life that was ignored by Vertex

A plea for life that was ignored by Vertex

Jan 19, 20242 min read

Right to Breathe campaigners ramp up pressure as Vertex shows callous disregard for CF patients

Right to Breathe campaigners ramp up pressure as Vertex shows callous disregard for CF patients

Right to Breathe campaigners ramp up pressure as Vertex shows callous disregard for CF patients

Dec 5, 20234 min read

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