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Stay up to date with our latest updates and news on our work, milestones achieved, and the latest developments in CF treatment access worldwide.

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How Cystic Fibrosis families took on Vertex in Hollywood

How Cystic Fibrosis families took on Vertex in Hollywood

How Cystic Fibrosis families took on Vertex in Hollywood

Apr 25, 20242 min read

Statement on SACFA Announcement

Statement on SACFA Announcement

Statement on SACFA Announcement

Apr 18, 20242 min read

Announcement on Breakthrough Prize collaboration

Announcement on Breakthrough Prize collaboration

Announcement on Breakthrough Prize collaboration

Apr 11, 20242 min read

South African cystic fibrosis patients take on landmark legal fight for access to lifesaving treatment

South African cystic fibrosis patients take on landmark legal fight for access to lifesaving treatment

South African cystic fibrosis patients take on landmark legal fight for access to lifesaving treatment

Mar 4, 20243 min read

A plea for life that was ignored by Vertex

A plea for life that was ignored by Vertex

A plea for life that was ignored by Vertex

Jan 19, 20242 min read

Right to Breathe campaigners ramp up pressure as Vertex shows callous disregard for CF patients

Right to Breathe campaigners ramp up pressure as Vertex shows callous disregard for CF patients

Right to Breathe campaigners ramp up pressure as Vertex shows callous disregard for CF patients

Dec 5, 20234 min read

“Stop holding my child’s life to ransom”: parents protest Vertex’s Boston HQ

“Stop holding my child’s life to ransom”: parents protest Vertex’s Boston HQ

“Stop holding my child’s life to ransom”: parents protest Vertex’s Boston HQ

Oct 31, 20235 min read

CYSTIC FIBROSIS PATIENTS & CAMPAIGNERS SECURE ACCESS IN BRAZIL

CYSTIC FIBROSIS PATIENTS & CAMPAIGNERS SECURE ACCESS IN BRAZIL

CYSTIC FIBROSIS PATIENTS & CAMPAIGNERS SECURE ACCESS IN BRAZIL

Sep 6, 20233 min read

Over 100 CF clinicians sign letter to Vertex about global access

Over 100 CF clinicians sign letter to Vertex about global access

Over 100 CF clinicians sign letter to Vertex about global access

Jul 31, 20231 min read

Vertex under pressure at the European Cystic Fibrosis Conference from patients and clinicians

Vertex under pressure at the European Cystic Fibrosis Conference from patients and clinicians

Vertex under pressure at the European Cystic Fibrosis Conference from patients and clinicians

Jun 15, 20233 min read

Right to Breathe campaign takes action at the Brazilian Cystic Fibrosis Congress

Right to Breathe campaign takes action at the Brazilian Cystic Fibrosis Congress

Right to Breathe campaign takes action at the Brazilian Cystic Fibrosis Congress

May 1, 20232 min read

Letter to Vertex: CF community demands global access to Trikafta

Letter to Vertex: CF community demands global access to Trikafta

Letter to Vertex: CF community demands global access to Trikafta

Apr 17, 20231 min read

BREAKING: Cystic fibrosis patients launch global challenge to Vertex monopoly on CF drugs

BREAKING: Cystic fibrosis patients launch global challenge to Vertex monopoly on CF drugs

BREAKING: Cystic fibrosis patients launch global challenge to Vertex monopoly on CF drugs

Feb 7, 20235 min read

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